Labour makes crucial pledge on cystic fibrosis treatment

Mon, 30/09/2019 - 11:28 -- Editor

Labour leader Jeremy Corbyn has pledged to force the pharma giant Vertex to make the cystic fibrosis drug Orkambi, which is suited specifically to younger patients, to be available at a price the NHS can afford.

A spokesperson for the lobbying group justtreatment.org made this statement:

"We’ve just secured a major breakthrough in our campaign to make the cystic fibrosis drug, Orkambi, available to everyone who so badly needs it.

In his speech to his party conference last week, Labour leader Jeremy Corbyn spoke about meeting with 9 year old Luis, who has cystic fibrosis and has campaigned long and hard to make Orkambi available.

Corbyn acknowledged the struggle to get access that so many families have endured in the face of Vertex’s extreme pricing. That struggle is what led a group of patients to establish a Cystic Fibrosis Buyers Club in a desperate bid to obtain a generic version of Orkambi, owned by pharma giant Vertex.

But then he went further, pledging to use already existing government powers to make Orkambi available at a price the NHS could afford."